Ok, so my first few blogs might be kinda strange cuz I have never done this before! But here is my story!
At the beginning of October I started to notice my joints would become very sore after walking or any activity, at first I thought nothing of it and thought maybe it would go away. After 2 months of the pain getting worse I decided to see my family Doctor. I was told it was most likely a virus and it would go away in another month or so. Well a month went by and pains were still becomeing more frequent and painful so I went back again, This time some minor blood work was done and all came back normal, but pain was still progressing. At this point it has started to affect my job, I would have to stop everything I was doing and sit for at least a half hour. At my work if your caught sitting your in big trouble, I eventually had to tell my boss what has been happening to me and that is something I did not want to do. By this point I was frusterated and stressed and wanted some answers, I brought my mom to the doctors with me and we asked to be refered to a specialist. The wait was suposed to be 3-6 months. A few weeks after the referal was sent off the pains got unbarable and nothing would bring them down, I was at work when this all happened, Stabbing and burning pains in every joint, biggest headache ever, very heavy chest and hard to breath, light headed and blured vision. Was probably one of the scariest things that has ever happend to me. My mom came and picked me up and we went in to the U of A hospital. They changed my meds and gave me a shot of Toridol, wich took away only the head ache. My appointment for the Reumatoligist was bumped ahead drastically, was seen the next week! She sent me for some tests, and gave me the results to the previest blood tests I did a month before, wich had possitive Lupus antibodies! Ya thank you medi clinic for calling to tell me I could have Lupus! So my new doctor sent me for some better tests to help diagnose what ever it is that is causing this grief! Ive gotten to the point were I know its something, and im more than likely going to have it for the rest of my life, I would like to be diagnosed so I can move on and start my new life and make the best of it! I plan on staying healthy, making a better diet plan and staying active, but first I need to be stress free! This coming Firday I have a bone scan, so I hope that goes well.
Im kind of nervous, scared, worried. Lots of tears at night. Bad dreams, sore days. Some days I even just want to be left alone, or just spend it with my son Aron. Im still new to this and dont know what to do or how to handle it. I do know that I am so very thankfull of my family and firends! Especially my mom and dad, the past few years would have been so hard with out them! My sisters teach me everyday that they`re watching and learning from me. My son, well he is the light of my life and I think I would go crazy without him by my side! Even on the worst and painful day he can still make me smile! Im not sure how but its almost like he can tell mommy does not feel good today because on those days all he will want to do is cuddle and not rugh house or play. I dont have a clue what I would do without any of them! I know that the rest of my family has me in there thoughts and prayers as well and Im so thankfull for them as well! I guess Family is all you need to be truely happy, no matter how sick or healthy you are!
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I love you so much hunny! Your blog is a fantastic idea. You need to talk about things so that not only you understand and cope, it will help those around you as well. You will be ok sweetie, you can do this...you have an amazing strength and determination that not all have. I believe in you! I found an article online that you will find great comfort in...it helped me and it helped me explain my condition to others...give it a read.
ReplyDeletewww.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
Love Aunty Jen